Comments on
The Secondary Health Care Crisis


It’s all over the news, how a second health care crisis is coming. News stories mention people with cancer and chronic illnesses. I’ve mentioned over the last few weeks how people in our audience are going without regular health care that they need while the system is overwhelmed with the pandemic.

3 thoughts on “The Secondary Health Care Crisis

  • April 27, 2020 at 2:33 am

    Hi Kristin,
    I’m glad you were able to get the pain relief you need! I feel so sad and angered that the lady in that news story wasn’t able to get NEEDED medication that was proven to treat her condition! I hope that has been resolved but it pains me to imagine what transpired for her health in the meantime.
    Speaking of pain, I get so discouraged some time because of it! Physically hurting daily wears me down emotionally. I wonder if that is common? Also, it puzzles me that I have tried multiple over the counter remedies and it really doesn’t do much at all. Is it just me?
    I am mostly referring to things like: Icy Hot, Aspercreme, Ben-Gay etc. I would think that if they say on the labels that it helps mild to moderate arthritis pain, strains, muscle over exertion…” that it would at LEAST relieve fibromyalgia pain for an hour or two but no luck. It makes me wonder…IS it REALLY fibromyalgia? Can fibro make your entire body ache 24/7? I have pain in my neck, shoulders hurt bad, into collarbone, upper arms and lesser on lower arms, lower back pain into buttocks and hips increasingly limits my walking any distance further than probably 40 ft without having to stop and press my lower body (especially buttocks and back) against a fence post or cement building if I am happening to go by one. Or simply sit which brings some relief but NEVER is there ZERO pain! My pcp is a nurse practitioner I have seen for years and she is who diagnosed the fibro. My knees seem a tiny bit better over the past few days so that is a plus but I sure wish I could find the magic solution–for ALL of us who hurt!
    My pcp is offering teleheath appointments but I don’t want to waste her or my time because talking about it by phone won’t solve it. She MAY offer to have me come in but it scares me due to the virus. Mostly though, I guess I feel that IF she had a solution for the pain, she would have told me long before now. Just discouraged I guess!
    Lori

    Reply
    • April 27, 2020 at 1:42 pm

      Lori, you are exactly the kind of person I wrote this for. I’m so sorry you’re suffering. I have pain most of the time, but with medication, it’s manageable. My sister has fibromyalgia, like you, and she is in constant, unrelenting pain. Her daily routine is based entirely on pain management. She uses hot tubs, ice, and exercises in addition to a variety of medicines. She’s had some success with antidepressants for pain control, and that’s commonly tried–you might ask your NP about that. I know when I take anti-anxiety meds (Xanax, specifically), it enhances my pain relief a lot. I can’t use it regularly, though, because it interferes with my short-term memory, ultimately producing more anxiety, and it ramps up my hot flashes to the point where I need 3 showers a day.
      There’s a lot of research going on in fibromyalgia pain management; you may be able to get into a study, as severely affected as you are. Ask your NP about that too.
      I’m still doing oxy, and I’m lucky to be on a stable dose and it still helps. Many people develop a tolerance and need more to get it done as time goes on. The thing that bothers me most about the “opioid epidemic” is that nobody seems to be coming up with an alternative. The answer isn’t not prescribing medication, it’s prescribing better medication that works without the addictive properties. We need effective, safe pain control–yesterday.

      Reply
  • April 29, 2020 at 3:40 am

    Thanks Kristin, for sharing your thoughts and giving me avenues I might explore. I had wondered after I wrote whether I had been too wordy or somehow didn’t relate it closely enough or at all to the topic of your post so I really appreciate your response! I was just writing with the sense that you would understand at least SOME of it LOL.
    I am sorry your sister suffers from pain also — AND, this may sound odd but it is also reassuring because I always thought that fibro was more of an occasional or intermittent and low level pain syndrome that really doesn’t effect one’s day to say life but I guess it surely can from the sounds of things.
    I take venlafaxine (effexor xr) which is an antidepressant but it has not done anything for my pain or my depression and I want to get off of it once this virus stuff is over and I can see my doctor. I also take on occasion a new med, hydroxyzine. She prescribed it for my severe insomnia but said I can also use it for anxiety. Maybe I should take it nightly rather than only when I really can’t deal with the exhaustion! (Ya think? LOL!!)
    Take care and stay healthy! Lori

    Reply
 

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