2 thoughts on “Who Would You Be Without Your Disability?

  • January 18, 2018 at 9:14 pm

    I have a disability that is very much hidden. On top of that is a ‘political diagnosis’; even medical professionals can disbelieve its existence. There are good medications, but again prescribing and taking them is itself highly politicised.

    But the disability itself is so tightly bound to our personality* that it’s a real hurdle for many. We worry about losing the good bits, and whether the trade-off against also losing the bad bits is worth it. All the more so because we don’t necessarily have great insight into the bad bits.

    For me, that’s amplified because late diagnosis means that it’s how I am, rather than how people with this disability are. So the identification is about self-perception, rather than about identifying with the disability forming a distinct part of that. I often take the meds when I can put my identity into the background, and rarely take them when my identity is salient.

    * personality as in a predictable pattern of behaviour and responses across different situations

    • January 18, 2018 at 9:53 pm

      That’s hard, Virago. I wish you the best possible management, no matter what the various factions say.


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