4 thoughts on “Limitations: When Something Has to Give

  • August 1, 2018 at 1:23 pm

    If I could write a list! Having an autoimmune disease means that sometimes, despite my best effort, my energy level is simply sapped. I catch a lot of flack for cancelling outings because not everyone knows about it (and even I occasionally forget I have it because of its intermittency). My depression and anxiety can also wreak havoc on my motivation to follow through on a commitment. That one I feel obligated to try to push through because socializing often has a healing effect on my psyche.

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    • August 1, 2018 at 1:27 pm

      I totally get it about forgetting you have it. I’ve only had this body in its current form for 8 years. People ask me about things to do and I’m all over it, like trying standing paddle boards, looks like a blast, right? Only people paddle out in a kneeling sit position that I can’t do, and it didn’t occur to me until I watched it demonstrated. Want to do a booth at a craft fair? Sure, sounds awesome! Then the day of–this is 9 hours long, what made me think I could handle it? Your “normal” self hears and answers and your flared self shows up.

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  • August 2, 2018 at 5:16 am

    It sounds like a temporary disabled parking placard would be appropriate for you. You could get a six month placard and then renew it in three month increments as needed. Sure, you wouldn’t use it often but it might make it possible to pursue a long planned event like the one you just had to cancel with Craig. A placard issued in Washington is valid in all 50 states so you could bring it with you to Portland, even though you are taking the train. Then if a Portland friend ferried you from the hostel out to dinner or something, you could use it in the friend’s car.

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    • August 2, 2018 at 10:05 am

      I was just thinking for my knee, maybe they’d do it. It’s been a sore point for me, I had one for a year after the crash, then they laughed when I wanted one after. Yes, I was bike touring, but I was also down with excruciating rib dislocations about 10% of the time, and I’m permanently unable to carry stuff any distance. I wanted the placard to use during flare-ups and they said said they did not issue them on the honor system.

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