I have to say, the continued response to the Premenstrual Dysphoric Disorder (PMDD) blog posts on the Family Mental Health blog is overwhelming. That’s so great! I would have never guessed that my own experience with PMDD would be able to help connect so many others going through the same thing.
I’m seeing several posts from women desperately asking for help because of their severe pain (associated with other PMDD symptoms). Medicine may or may not work, they’ve been on a carousel of doctor referrals, their symptoms shut down their life and they can’t find relief. Oh, it makes my heart sad to hear these stories. Hang in there!
Just a quick disclaimer – I am not a medical doctor, I am a mental health therapist. So please know that anything I may suggest will be from my personal experience or within my professional abilities. That being said, I feel I must respond to the complaints of severe pain and cramping. Ongoing severe pain is really out of my realm of professional knowledge, but I know just the kind of pain you are talking about. It’s nothing you want to deal with any longer than you have to.
To make a small dent here, I decided to do a quick Google and find a little info on Premenstrual Dysphoric Disorder and pain. Unfortunately, the more you search sometimes, the more you can’t find what you want. Hopefully the time I spent scanning the internet can make your search for answers a little shorter.
I found one great suggestion that anyone can do no matter where you live. The American Medical Association (AMA) has a function called DoctorFinder. You have to accept a disclaimer, then you get to a page where you can either search by name and location or specialty and location.
For someone with PMDD, I might suggest looking up psychiatrists or ObGyns in your zip code or neighboring zip codes. Call and find out if they treat PMDD specifically. And if they don’t ask who they know that does – even if they are several cities or states away from you. Also, if you have severe pain and need to see a pain specialist, you can look up neurologists in your area. Along that line, I also found Pain.com. They have a search page for pain clinics by state.
Here’s the thing – if you are experiencing symptoms so severe that they affect your daily life and ability to function, you need to keep searching. This pursuit of an answer may involve going beyond your local area. In fact, the Mayo Clinic is a place many people with difficult diagnoses end up because nobody else seemed to have an answer.
It’s also possible you may have another diagnosis along with your PMDD creating or amplifying your pain. Perhaps the source of your pain is from something undiagnosed, but they are worsened during your experience of other PMDD symptoms.
If you have experienced severe pain and found relief, please add your resource or experience down below the post. I know many others would like to find a few answers. I haven’t found any particular proclaimed “experts” on PMDD as of now. But if I do, I will try to provide a link or summary of any new suggestions. And if any of these links don’t seem to work, let me know. Take care and keep adding your comments.
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From Psych Central's website:
PsychCentral (October 13, 2009)
Last reviewed: 13 Oct 2009